being

Hold up

It’s been a big couple of weeks. I got to see my boyfriend (twice!) I had a birthday, and an anniversary, met my new dermatologist, and even managed a (very long) day trip to Welly. It was wonderful, it was fun, and it was absolutely exhausting. 

When my 7am meds alarm went off this morning I made the executive decision to turn the damn thing off and go right back to sleep. 

Rest days are hard. Managing brain stuff means pouring what little energy I have into the routines that keep me functional, and by about 2pm I was both bored out of my mind and completely out of energy. 

Luckily, there was new tea, charging in the sun on my behalf (since I’m currently doing a damn good impression of a vampire)


There was the beginnings of a blanket, for a tiny and brand new person


And there was Stella, who was absolutely not following me around and just coincidentally happened to be in the same places as me most if the afternoon


She’s trouble that one. 

being

slow down

I’ve had a rough couple of days, energy wise. My hips hurt. My head hurt. My internal organs started beating each other up, my physio beat me up (I mean, she’s lovely and helpful but ow), and my appointment with the new rheumatologist left with a whole lot of processing to do.

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The weather’s been grey and drizzly

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But my cat’s been surprisingly affectionate

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And I made a new friend*

I made it through. This week it’s MRIs (an arthrogram, I’m dreading it), assignments, and if I’m lucky, some news about a surgery date.

*If anyone knows what this plant is, please let me know. It was helpfully labelled “tabletop plant”, but I’m going to assume that’s not the technical name.